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Huntington's Disease & Diet

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The Benefits of Nutrition in HD

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The Benefits of Nutrition in HD The benefit of a high caloric diet has been beneficial to all in our support group, improving coordination, lessening choking, and improving moods. One person needed a feeding tube because the fear of choking had caused severe weight loss. After liquid feeding and gaining some weight back, this person regained enough coordination to begin taking some nutrition by mouth. Another person, had lost 50 pounds, and when given a 5000 calorie diet gained the weight back. This person now walks unassisted. The correlation between calories and coordination has been documented: Maintaining adequate weight, and in fact gaining weight, particularly in the late stages, has been seen to result in improvement of chorea as well as alertness and responsiveness. The Physicians Read More
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Eating and Swallowing

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Eating and Swallowing Jeff Searle, MS, Department of Hearing and Speech Kansas University Medical Center SETTING: Quiet, relaxed atmosphere. Avoid eating when tired, upset or stressed. Good lighting so that all food items can be seen. Avoid talking while eating/swallowing. POSTURE: Sit upright for all meals, snacks or drinks. Swallow with the head tilted down so that the chin points to the chest (a pillow or rolled towel behind the head may be helpful for keeping the head in this position). Stay seated upright for 20-30 minutes after a meal or snack. Experiment to find the best way to minimize head movements. Resting the elbows on the table with the chin resting in the palm of the hands may work best. MEAL DURATION: Eat several (4-6) smaller meals throughout a day rather FREQUENCY than thr Read More
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Nutrition for People with Huntington's Disease

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Nutrition for People with Huntington's Disease Introduction | Resources By Renette Davis with assistance from people on the Mailing List for Huntington's Disease Introduction Dysphagia is the most common cause of death in HD, either directly from suffocation or aspiration, or indirectly from starvation. (From A Physician's Guide to the Management of Huntington's Disease by Neal G. Ranen, M.D., Carol E. Peyser, M.D., and Susan E. Folstein, M.D., published 1993 by the Huntington's Disease Society of America, p. 24.) Dysphagia means difficulty in swallowing. According to A Physician's Guide to the Management of Huntington's Disease dysphagia in Huntington's Disease appears to result from "difficulty with closing the mouth and chewing, mucus formation, choking on liquids, food gulping, di Read More
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